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A
MESSAGE OF GRATITUDE
TO THE ONLINE SCIENCE FICTION FANDOM COMMUNITY
:)

This
is an open "thank you" letter to all members of the online SF fandom
community. Please pass this grateful note on to
anyone else in
the SF world who would be interested in reading this story.
It's time
for you to be proud - even if you were not intially involved - for you
are a part of a community who changed the life of one very scared Stage
4 breast cancer patient. You are the people who made
Christmas of 2009
an unexpectedly bright time in a very dark chapter of her
life. This
is my story. I am Elana, creator of the B5 Jumpgate <*>
Pins. Here's how it all happened.
MY CANCER HISTORY
I
was originally diagnosed with stage 1 breast cancer in June of '07. I
had my surgery in Portland, Oregon just before I moved to Southern
Nevada in September '07 for a new life and chemotherapy.
(Check out
the sticker I put on the surgery site to surprise the surgeons: Elana's tumor
humor). ;)
By
August of 2008, I thought my cancer had gone. The scans
seemed clean.
Turns out that some bad cells had lurked and survived. In
spring of
2009, a CAT scan revealed that the cancer had not only returned to the
breast, but spread to the liver as well. It had become Stage
4
cancer. (There is no Stage 5.) This
was also
"triple negative," a kind of tumor which is very difficult to treat.
There is a kind of 1 to 100 growth-factor scale that oncologists use to
measure how aggressive a tumor is. A less-threatening tumor
is one
that has a growth/aggressiveness factor of maybe below 10 or
20. Mine
is in the 70 range. Pretty scary stuff.
The chemotherapy I got this time around was pretty scary stuff
too.
Bone pain meant that I found it difficult to walk. Fatigue
took away
my ability to be mobile for more than perhaps 4 hours a day.
FEAR AT HOME
On top of this, the financial strain meant that I could not afford a
good place to live. I ended up renting a cheap room in a
house owned
by a landlord who was on the verge of a gambling addiction and a
housemate who was an alcoholic and a repeat felon who screamed violent
threats when drunk. I had to call the cops on him.
The cops said I
was right to call but they could not do anything more unless he
physically harmed me. I had no money or energy left
to move anywhere
else, so I
stayed scared and
locked inside my room most of the time.
By November, the landlord told me I needed to be out before New Years
because he wanted my room back. I had no money to move, no
spare rent
for a deposit and a phone that was about to get shut off due to
non-payment. Other overdue expenses I won't get into at this
point
loomed, causing no end to the fear that I was experiencing.
Stress
does NOT help heal a cancer patient. If I could not quickly
find a new
place to live which I could afford, there could be no chemotherapy
treatment and no place for me to recover.
SOME POSSIBLE HOPE
There was one possible ace in the hole, however. A decade and
a half
ago, I became involved with Straczynski's B5 efforts. I
became the
volunteer online liason between composer
Christopher Franke
and the B5 fans on Usenet. (Christopher later thanked me by
including
my name in some of the CD soundtrack liner notes.) That's how
I joined
the B5 community in the first place.
The first year the show began, B5 fans were clamoring for something,
anything they could buy that was related to the show.
The B5 fans - in the meanwhile - had adopted the <*>
symbol for
themselves as a sort of "secret handshake" online to identify
themselves to each other. I realized that since this symbol
was
created by fans of the show, I could be legally free to create
something special that did not violate any kind of official
copyright. I had access to
some rather sophisticated metalworking equipment at that time. Thus the
Jumpgate Pins were born.
(With
the help of Troy Rutter, I was to later learn that certain VIP legal
eagles behind the show were willing to be kind to my
efforts.) J. Michael
Straczynski himself approved the first Pin and said "Go with
Kosh."
The Pins sold pretty well for about a year. Then sales
dropped off as
merchandise companies discovered the B5 cash-cow and came out with the
usual t-shirts, action figures, etc. I let my Jumpgate Pin
website
slide into semi-oblivion and just kind of let it go. However
there
were still were quite a few Pins left.
Fast forward back to December of 2009. There I was, about to
be
evicted, scared, needing to find a new place to live while still in
chemotherapy. I looked at the box of Pins that had moved with
me to
Nevada. I wondered: is there any chance that I could still
sell any of
these? Should I even try?
"Go with Kosh" I
remembered.
So I decided to go on faith.
I rebuilt the www.jumpgatepins.com website. Now I had to find
a way to
at least sell a few of these Pins. If I could get at least a
few
sales, maybe I could get enough funds to cover moving costs and pay the
phone bill.
Despite
not knowing how I was going to pay for it, I started a search for a new
place to live. I found something affordable in a better
neighborhood
that seemed positive. Then I hoped for the best; hoped for
something
that would help me get there.
A HOLIDAY MIRACLE...
Linda Bushyager, a good friend of the online SF fandom community,
decided to send an alert about my situation to a few of her best online
contacts. On December 16, she sent out a call for help on my
behalf,
letting folks know that the Pins were available and that purchasing one
would help change the life of a Stage 4 breast cancer patient for the
better.
Overnight, her alert went viral. It spread through emails,
through
blogs, through Facebook, via LiveJournal and on through many members of
the SF fandom community. When I woke up on the 17th, I
was
astonished to see a mini-flood of orders for my Pins! With my
very
limited amount of energy per day, it took a whole week to ship all the
Pins that were ordered. The last one went out the day before
Christmas
Eve. Fortunately, all you classy people out there who had
ordered
Pins understood and did not complain at all about the inevitable "late
for Christmas" factor. (Thank you all for that.)
...BECAUSE OF YOU. :)
I am grateful to all of you who were part of the effort in passing on
the news when it was needed.
To those who are reading this news for the first time, be proud that
you are part of a fantastic online community who changed the life of a
stage 4 breast cancer patient for the better.
I am now
living in a rented room in a beautiful house. I have discovered that
all of my new housemates are incredibly compassionate people who are
gentle and want to help me recover from cancer. Better yet,
my new
landlady is a medical professional who can understand my situation. I
do not have to be afraid in my own home anymore. I get to
live within
close view of a beautiful desert mountain that looks amazing during a
Nevada sunset.
At my most recent oncology visit on January 19, I learned that the
chemotherapy had been effective in starting to shrink the tumor. Before
you guys came through for me I was afraid that I would have to delay my
chemotherapy for an indefinite time because I did not have the funds to
move to a safe place for a good recovery. Because of the SF online
community came through during a very difficult time, I now
get to hope
for a much brighter future. Best of all, my oncologist is
reducing the
amount of medicine she is giving me in chemotherapy because I am
starting to do so well. I think the reduction of stress with
the new
place and the compassionate new housemates has a lot to do with
that.
:)
So
onwards and upwards. By
passing on the word about the Pins and my cancer situation, the online SF
fandom
community created the bridge for me to have a new chance at health and
recovery. I am deeply grateful.
Now that the
worst is over, I still have a recovery road ahead of me, so a little
more help is could make quite a difference in building my own new life.
I
now have a vision of a little part-time computer consulting
graphics business I can do from home even while chemo keeps me from
doing a day job. My goal now is to sell the remaining Pins to
fund the
computer upgrade that I need to make that happen. Read about
my new plan in my new blog.
THANK
YOU, SF FANDOM!
Thank
you again for both the moral support and the Pin sales. I
think the SF
community can be proud of it's caring for one of their own in
need.
Please forward this note to anyone you know who might find it
inspiring. :-)
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